What Has Been Your Experience With Tecfidera?
If you're familiar with MS, chances are you're familiar with Tecfidera. It is the most prescribed oral MS therapy for relapsing MS globally. You may currently be taking Tecfidera or you may have heard about it when Biogen released a commercial that didn't quite sit right with many MSers. Like many drugs, Tecfidera comes with a laundry list of side effects. And at times, some may even be worse than the disease itself. For instance, I am currently taking Tecfidera and often exp
Top 5 Things You’ll Need If You Have Multiple Sclerosis
5. A Neurologist And not just any neurologist but one that you trust. Whether you’ve opted to take disease-modifying drugs or not, a neurologist needs to be on your speed dial. Why? Because your acupuncturist can’t order an MRI to see your progress or prescribe you medicine if you do have a relapse. If you’re looking for a neurologist, check out the American Academy of Neurology. You can filter by subspecialty so you’ll have an easier time locating a multiple sclerosis specia
An MS Love Story: MCP Users Jen + Dan Digmann Share Their Secret
If you are someone with MS who believes you can't find love, this post is for you. When Jen first met Dan, she had just lost the ability to walk. She didn't think she'd ever find a man who'd want to be with a woman in a wheelchair. We're happy to report she was wrong. Watch the video below to meet Jen and Dan- a happily married couple who don't let MS define them. Instead, they define what MS is in their lives- together. #love #support #mscommunity
The Week In (Awesome!) Multiple Sclerosis News – June 21, 2016
Hello there! Our week has been busy as usual, but we are happy to be able to bring you some good medical news. From more insight into the causes of MS (processed foods and a very sneaky mutated gene), to ever growing research into advanced treatments and possibly even a cure, here is your week in (awesome) MS news. √ Stem Cell MS Patients Lead Normal Life Thanks To aHSCT Procedure: An aggressive chemotherapy, aHSCT, was conducted in a clinical trial of 24 multiple sclerosis p
Guest Post: Filmmaker Libby Spears On Working With MSer Lydia Emily
I first met Lydia Emily in 2013 when we were commissioned to make a short film about a survivor of sex trafficking for CHIME FOR CHANGE. Right away, I knew I wanted to celebrate the resilience of Jessica, the woman we profiled, and I could think of no better way to do this than by bringing in an artist who could paint a public mural in her honor. By great luck I found Lydia Emily and she agreed to help us. It was over those first few weeks that she started sharing more about
When You Learn A Friend (Also) Has MS
Recently I learned that a former co-worker, Jenise, was diagnosed with multiple sclerosis in 2015. I heard about her diagnosis from a Facebook post where she proudly shared some good news - The Copaxone was working! No new lesions! This was, of course, excellent news, but I couldn't help but feel sad for her. Or rather, sad for myself. I liked Jenise a lot. She was a sweet girl, a beautiful spirit inside and out, and she didn't deserve MS. But then again, does anyone deserve
Corin Hopkins On Multiple Sclerosis + The Human Default
My multiple sclerosis helped me define myself as a human being. As my immune system ate away at my nervous system, I discovered the simultaneous separation of and connection between my physical self and my mental self. My diagnosis of this incurable disease led me to realize that I could no longer regard myself and the outside world as most people do, and though it sent me reeling for a while, ultimately, this solidified my sense of self as a unique individual. Before The Dia
MCP User John Arbino On Life After “The Boom”
John Arbino is not your ordinary hero. In 2003, while serving as an Intelligence Officer for the US Army, he was diagnosed with multiple sclerosis. After experiencing an exacerbation which made walking difficult, John moved to a wheelchair. But this turn of events only made John more motivated to thrive with his MS. John calls this moment "the boom" - it's not what has happened to you but how you react afterwards that's most important in defining what your life becomes. Watch
How She Does It: Beth Prystowsky On MS, Motherhood & Blogging
Guest Post by Modern Day MS blogger Beth Prystowsky. The day I was diagnosed with multiple sclerosis, I took my kids out for sushi. My kids were four and six at the time. It was September; my son had just started at a new school and my daughter was in preschool for only two hours a day. From the hospital, I organized school activities and drop-offs and continued to write my blog, Ups and Downs of a Yoga Mom. My right foot seemed to drag behind me when I walked, despite the yo
How Has Transitioning Out Of The Military Affected Your Life?
Social Media Director for Project Rebirth, Department of Army Civilian and prior OIF/OND contractor, Monica Davis, has partnered up with Kate Milliken, founder of MyCounterpane, to ask an important question to veterans everywhere - How has transitioning out of the military affected your life? Portions of your responses will be edited into an awareness video that we can all share as a first step to inspire others, impact the lives of veterans across this country, and join a co
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